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Data Coordinator - Genomics of Rare Childhood Diseases

This is a part-time position of 22.5 hours and carries a salary range of: £34,343 - £41,555 (F/T equivalent).

Fixed-term until September 2021.

We are seeking a highly motivated, proactive and organised individual to assist in the management of the Deciphering Developmental Disorders study and other Genomics of Rare Childhood Diseases studies.

The purpose of the role is to provide administrative support and develop communication within the project. The successful candidate will be expected to: handle internal and external communications; draft regular website updates; organise team meetings; deal with queries relating to sample or clinical data queries; coordinate progress reports; and receive, monitor and progress registered expressions of interest in complementary research projects associated with the programme (internal and external).

The position requires the ability to multitask, manage competing priorities and meet frequent deadlines.  The successful applicant will have excellent communication skills with the ability to develop strong collaborative relationships with colleagues at the Institute. This role may suit either an experienced data/scientific coordinator, or an early-stage scientist looking to move towards project management.

Job Reference

Essential Skills

Background in genetics, genomics or molecular biology BSc or equivalent in a biological discipline, or experience managing or coordinating scientific research projects/clinical trials. Highly motivated and proactive, the successful candidate will assist in driving the project forward. Excellent administrative, organisational, communication and multitasking skills required. Proficiency with MS Office applications is needed, as is sensitivity to confidential patient information and meticulous attention to detail. Familiarity with working with large datasets is essential

Ideal Skills

Database experience and knowledge of genomics or clinical research would be beneficial.


Other information

The Deciphering Developmental Disorders (DDD) project is a translational research study that aims to delineate the underlying genetic architecture of developmental disorders, and inform the use of new genomic technologies in the clinic for providing genetic diagnoses. Through a unique collaboration between all 24 UK NHS and Eire Regional Genetics Services and the Wellcome Sanger Institute, the DDD has collected DNA and clinical information from 12,000 undiagnosed children in the UK with developmental disorders and their parents. The study uses high-resolution aCGH and genome sequencing to investigate the underlying genetic cause of the child’s developmental disorder, and where possible, feeds this information back to families via their doctor. For more information see:

The Wellcome Sanger Institute is a charitably funded research centre and committed to training the next generation of genome scientists. Focused on understanding the role of genetics in health and disease and a world leader in the genomic revolution, our mission is to use genome sequences to advance understanding of human and pathogen biology in order to improve human health. We aim to provide results that can be translated into diagnostics, treatments or therapies that reduce global health burdens. Our science is large-scale and organised into Programmes, led by our Faculty who conceive and deliver our science, and supported by our Scientific Operations teams responsible for all data production pipelines at the Institute. 

Our Campus: Set over 125 acres, the stunning and dynamic Wellcome Genome Campus is the biggest aggregate concentration of people in the world working on the common theme of Genomes and BioData. It brings together a diverse and exceptional scientific community, committed to delivering life-changing science with the reach, scale and imagination to pursue some of humanity’s greatest challenges.

Our Benefits: Our employees have access to a comprehensive range of benefits and facilities including:

  •  Defined Contribution Pension Scheme and Life Assurance
  • Group Income Protection
  • Private Health Insurance
  • 25 days annual leave, increasing by one day a year to a maximum of 30
  • Family friendly environment including options for flexible and part-time working, a childcare voucher scheme, Campus Nursery and Summer holiday club
  • Two days paid Employee Volunteering Leave a year
  • Employee Discount Scheme
  • Campus Gym, tennis courts and sports hall plus a range of dining facilities
  • Active Campus Sports and Social Club
  • Free Campus Bus Service

Genome Research Limited hold an Athena SWAN Bronze Award and will consider all individuals without discrimination and are committed to creating an inclusive environment for all employees, where everyone can thrive.

Please include a covering letter and CV with your application. Closing date for applications: 23rd June 2019